Donate to Support Our Work With the NF Community!
Support the 26,500+ people with NF in the UK
What Is Neurofibromatosis?
Neurofibromatosis is an incurable, neuro-genetic condition that causes tumours to grow on nerve endings, affecting over 26,500+ children and adults living in the UK. Neurofibromatosis, collectively known as NF, is the medical group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN).
For over 45 years, Nerve Tumours UK has provided support and advice to help everyone in the UK NF Community through funding a unique specialist support network, comprising regional nurses, national helpline, clinical guidelines, information days, an interactive website, online communities plus medical guidelines/literature.
Our aim is to meet the needs of the 26,500+ in the NF Community, as well as helping more people to know about and better understand Neurofibromatosis.
But we are 100% funded by voluntary donations, so are entirely reliant on your fundraising support!
Any amount donated will make a real difference:
- £12 could fund a copy of our iNForm Your School Pack
- £35 could fund Nerve Tumours UK digital platforms, e-newsletters and essential updates for the NF Community for one month
- £70 could fund both an initial call and follow-up one from our National NF Helpline
- £215 / £270 could fund a school advisory meeting with parents & associated medical practitioners or a home visit, crucial for newly diagnosed de novo cases
- £1,350 could fund a part-time Specialist NF Nurse for approximately one month
Please do note that these are just illustrative amounts to show how your donation can make a difference. You could give one of these amounts, or any other amount of your choice; we are incredibly grateful for all and any donations and support!
– Karen Cockburn, Charity Director of Nerve Tumours UK"It is only by raising understanding and awareness that we will be able to meet our goals of providing first-class support to those who need our services."
There are a variety of ways you can donate:
- One-Off. You can choose to donate a preset amount or one of your own choosing. Either click/tap on the button immediately above, to donate via our JustGiving page, or use the ones at the bottom of the page to combine it with a purchase from our Shop!
- Regularly. As with One-Off donations. Please choose the amount you wish to regularly give each month.
- Support a Fundraiser. If you are looking to support someone you know who is taking on a Fundraising Challenge for us, head to our Fundraising Hub to find their page!
- By BACS. If you would like our bank details, please contact our Fundraising Team on fundraising@nervetumours.org.uk or 020 8439 1234
- By Post. Click/tap on the button below to download a donation form to print, fill out and send to our office. The address is on the form.
Donate £5 on a Monthly Basis
Five pounds a month, twenty-five doctors supported per year.
Our Neurofibromatosis Medical Guidelines are sought by even the most experienced doctors and specialists. Your donation allows us to continue providing with these cruicial guidelines, that have been vetted by the some of the worlds leading consultants. Five pounds could be the difference between someone’s local GP not recognising Neurofibromatosis, or catching it early and potentially minimising the impact of the condition. By making this a monthly donation, your impact will be that much more, and you can help affect that many more lives.
Donate £10 on a Monthly Basis
Provide crucial information for twelve newly diagnosed people.
Information is crucial at the point of diagnosis. All people with Neurofibromatosis know what it is like to feel overwhelmed. Most, if not all patients won’t know what it means for their future. After someone is newly diagnosed, information and reassurance are vital. Based on a year’s worth of your monthly donation, your gift would impact the lives of twelve individuals or families who have been newly diagnosed with Neurofibromatosis.
Donate £20 on a Monthly Basis
Fuel crucial Neurofibromatosis clinics and support sessions.
When someone first sits down with one of our Specialist NF Nurses, it’s an important moment. It’s the beginning of a new, formative relationship that could one day, have a transformational effect on the lives of the family or individual. These meetings can be key to a patient’s life and development- and based on a year’s worth of your gift, your donations would pay for the equivalent of a specialist first consultation providing crucial reassurance, guidance and direction. That is a very real impact, that many people who have received support have cited as incredibly reassuring.
Donate £30 on a Monthly Basis
Provide 1.5 Days worth of our Neurofibromatosis Helpline’s confidential support.
It is incredibly difficult to truly convey the importance of our Helpline. It plays a crucial role in making our support services readily available. Our specialists are trained to provide accurate, considered, non-judgemental advice and support in accordance with guidance from some of the top Neurofibromatosis consultants and experts in the country. Based on a year’s worth of your donation, you would fund 1.5 days worth of our helpline. This amazing contribution would allow us to provide a crucial first point of contact to many who need it, who are not covered by our regional NF Nurses, and provide vital information and referrals.
Donate £50 on a Monthly Basis
Eight home visits mean eight lives improved.
It’s hard to describe to anyone who’s never needed specialist support how important information can be. Long nagging questions get answered. Progress gets made. Reassurance can fix a lot of life’s ailments (though not everything), and even when our concerns aren’t able to be truly fixed; information is the first step on the road to regaining your life. A year's worth of this donation would allow us to fund the equivalent of over one hundred people’s first information packs as they seek that ever-crucial support.
Donate £100 on a Monthly Basis
One hundred pounds per month means one hundred and twenty people informed.
It’s hard to describe to anyone who’s never needed specialist support how important information can be. Long nagging questions get answered. Progress gets made. Reassurance can fix a lot of life’s ailments (though not everything), and even when our concerns aren’t able to be truly fixed; information is the first step on the road to regaining your life. A year's worth of this donation would allow us to fund the equivalent of over one hundred people’s first information packs as they seek that ever-crucial support.
Donate £5
Five pounds allows us to support five doctors.
Even Doctors need guidance.We often take the knowledge, experience and wisdom of our GPs, Consultants and Doctors for granted. The truth of the matter is, even Doctors need support and advice regarding best practice. Your donation allows us to continue providing crucial Neurofibromatosis Medical Guidelines, that have been vetted by the some of the worlds leading consultants. Five pounds could be the difference between someone’s local GP not recognising Neurofibromatosis, or catching it early and potentially minimising the impact of the condition.
Donate £10
Ten pounds will help us provide crucial information.
Information is crucial at the point of diagnosis. All people with Neurofibromatosis know what it is like to feel overwhelmed. Most, if not all patients won’t know what it means for their future. After someone is newly diagnosed, information and reassurance are vital. Your donation helps us fund information packs, support services, medical advice and much more, to do just that.
Donate £20
Twenty pounds funds initial support sessions for people with NF.
When someone first sits down with one of our Specialist NF Nurses, it’s an important moment. It’s the beginning of a new, formative relationship that could one day, have a transformational effect on the lives of the family or individual. These meetings can be key to a patient’s life and development- and your donation would pay for the equivalent of a specialist first consultation providing crucial reassurance, guidance and direction.
Donate £30
Provide an hour of safe, confidential support.
A lot can happen in an hour. This is especially true of the conversations with the Neurofibromatosis Helpline Specialist Advisors. Our Neurofibromatosis Specialist Advisors are experts in Neurofibromatosis and patient care. They provide accurate, considered, non-judgemental advice and support in accordance with guidance from our Medical Advisory Board. Our helpline reaches areas where our Specialist Network do not yet cover and is the first port of call for those seeking support. Your donation of £30 effectively pays for an hour of this service, and that hour could change someone's life.
Donate £50
The value of school visits can’t be underestimated.
Schools, despite meeting all standards expected of them have a difficult job keeping up with the care of children with special requirements. When a condition such as Neurofibromatosis is relatively unknown, the value of a Specialist visiting the school is of huge importance. Our Specialists, inform and guide the staff to better their care for children and teenagers with Neurofibromatosis. Your generous donation could help towards the cost of a school visit from a Specialist NF Nurse. Offering a better future for children living already complicated lives through our specialist support services.
Donate £100
Half a day of consultations, a life’s worth of impact.
It’s hard to describe to anyone who’s never needed specialist support how important those moments are. Long nagging questions get answered or at least looked at. Worries and myths get laid to rest and dispelled. Even when all of our concerns aren’t fixed - as is all too often the case, the reassurance of having the expert help and support is incredibly important and provides much-needed reassurance. Your donation would be equivalent to funding a half day of one of our Specialist NF Nurse’s day, which would, in turn, hold you responsible for some life-changing advice and support.
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